In each portrait we hear a person addressing a family member, their loved ones or former colleagues. They recall one of the dearest memories they shared together. It’s a memory which clearly brings them joy, but at the same time we sense a sort of burden. An unspoken tragedy difficult to identify.

When they’re finished sharing their memories it becomes clear why: these people are suffering from young onset dementia. Whilst they still have those memories for the time being, they’re fully aware of what’s coming ahead.

At the end each radio-documentary listeners are invited to share own memories with their loved ones on ‘imstillhere.be’.

Young onset dementia affects around 6.000 people in Flanders. Unfortunately, it remains a disease shrouded in taboo: dementia is still far too often associated with older people, by patients and doctors alike.

As a result, when young and active people encounter the symptoms for the first time, they are reluctant to go see a doctor. And when they eventually overcome their initial hesitations, they’re often confronted with incorrect diagnoses such as stress, burnouts or even depression. After all, it seems a bit far-fetched for a 55-year old to be struggling with dementia. Even for a professional.

As a result, it takes an average of no less than 4 years before patients receive the correct diagnosis. This means patients lose 4 years treating diseases they don’t have, instead of preparing for the journey ahead with Alzheimer’s.

That’s why the Alzheimer League Flanders wanted to break the taboo of young onset dementia.

MVO:

Hi guys of the intervention team C130 Melsbroek,

Do you remember the good old days (missions) in Kenia? We were flying so low over the Serengeti that we were able to see a lot of wild animals. Elephants, antelopes, gazelles ...

When we were going by foot we even had to look out for snakes. It was a beautiful experience which we all enjoyed very much.

They were the most amazing missions we ever did. I feel blessed to have shared this with you. Thank you!

My regards

‘The Garf’

(MUSIC)

One day I probably won’t be able to remember it. And maybe will have trouble recognizing you.

But know, even if I sit silently next to you, we had some wonderful times.

ANNCR:

Johan is 53 years old and suffers from young onset dementia.

Leave your dearest memory for your loved ones on 'imstillhere.be'.

An initiative of the Alzheimer League Flanders.